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The Cystinosis Family Support Network
(CFSN) vision is to support families affect with Cystinosis.
To support as many
families in the UK
as possible. To provide family assistance and education to the
public, relatives, and medical professionals who have not been
in contact with this disease. CFSN is a non-profit organisation
which relies on support from volunteers,
family members of
children and young adults diagnosed with cystinosis, and a small
number of UK companies.
We currently have over 134 website
members, and over 1870 individual supporters, these individuals
have sponsored events, purchased balloons, and generally help
raise funds.
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We'll be updating you all soon on what
events are planned for 2007.
We are hoping to have the following:
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Read More |
13 May 2007 -
T
he
Leeds Half Marathon plus 1.5 mile family fun run.
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Read More |
Gilroyd Working Men's Club,
Barnsley |
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Latest Events
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New Family Story Online:-
The McTear Family
Daniel was born 28th june 2003 was a healthy 8lb baby.....
full story here
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